(ok, so I know the phrase is supposed to be ‘that difficult second album’ – but I’ve already written my second post, so it’s too late for that. And under the circumstances, I think I will allow myself the small pleasure of misappropriating the odd phrase for my own purposes)
So it’s been just over a week since my treatment. In terms of side effects, a few more came on over the weekend. Started to feel a little grotty Friday evening, and felt dead tired Saturday (and a little ‘not with it’ – not dissimilar to being hungover).
I was worried for a while I was developing a chest infection / fever – which would have been bad. I have a little yellow ‘this patient is on chemotherapy’ card from the hospital, which lists the circumstances under which I immediately have to go to A&E, including high temperature, flu like symptoms, etc, etc. I didn’t really want to go to A&E, not on my first cycle at least! But fortunately with some early nights and resting, it didn’t materialise into anything significant.
My back has been giving me grief over the last few days – as mentioned in my first post the lesion on my spine is giving me sciatic pains down both legs. Not sure what’s made it worse the past few days – I think I slept awkwardly Friday night due to not feeling well; or maybe it just seems worse as a result of being a bit more sensitive to pain in general the last few days (a chemo side effect I assume).
Sally has been amazing (as ever), doing the vast majority of the Saskia work (entertaining, changing, bathing, feeding of porridge, removing of porridge from nose, ears, eyes, hair, etc) while I rest to help my back recover. Hopefully it will improve soon and we can share the load a little more evenly.
All that makes it sound like the last few days have been terrible – which I should stress isn’t the case. On Friday the three of us had a lovely sunny alfresco lunch at ASK (courtesy of our Tesco Clubcard vouchers – guilt free lunch tastes even better). And I’ve even begun venturing back into social situations – met with some NCT (ante-natal) friends Friday afternoon, and spent some very enjoyable time with friends Saturday and Sunday.
The last few days have also brought more acts of kindness and generosity. We’ve had a hamper full of goodies, offers of financial support, been treated to lunch, and plenty more messages of support and goodwill. I also received a collection of Daniel Kitson (stand up comedian) material to watch – which is good and very timely, as over the last month I have exhausted Stewart Lee’s (another stand up comedian) entire back catalogue. My recent routine has been something like this…
Go to hospital, get told you have cancer… go home, watch a Stewart Lee DVD to take your mind off it…
Go to hospital again, get told your cancer is worse… go home, watch another Stewart Lee DVD to take your mind off it…
And so on…
I wonder what will happen if (or thinking positively, ‘when‘) I go to hospital and get good news? Perhaps I’ll feel the need to come home and watch a documentary about cancer, just to keep myself on an even keel psychologically.
Right, I think I will leave it there for now – thanks to all those who have viewed the blog so far, and sent feedback and messages of support as a result – it’s been very encouraging.
I think I will try to make the next post about Saskia, for a bit of a change / light relief. Going swimming with her this morning – should be fun.
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