Just a quick update to let you know what’s happening with my treatment – we finally have a plan (well, somewhat!).
So we heard from both the Royal Marsden and Canterbury Hospital today – I will be having the radiotherapy locally, so as to save traveling to London day after day. In all other aspects the treatment will be the same between the two hospitals, so this makes sense – especially given the predicted side effects.
However, before we can begin in earnest I need to have an appointment with the consultant at Canterbury, so he can plan the treatment properly. Early indications suggest it’s all a bit more complicated that just turning up and having your head irradiated (which is actually very reassuring). They have to look at the scans, then calculate power, angles, and other things I don’t fully understand right now. Apparently some patients even have to have a special mould made for them before they can start (I expect they will probably want to do this for me to protect my incredible looks).
So I am due in on Thursday to begin that process – then the treatment itself should begin shortly after.
In some ways I was hoping it would be earlier – I guess when you have cancer it’s natural to want to hammer it as hard and as quickly as possible. But on the other hand, it is a bit of a reprieve – as I explained previously, it was the timing of all this brain stuff that was most upsetting. I had a whole list of things I wanted to do before I found myself wiped out and too tired with this treatment, so at least I now have a few days to get a move on.
While we wait then I continue with the steroids and painkillers to keep the symptoms under control. Speaking of symptoms, no real changes there to report – occasional head pressure still (but under control with painkillers), vision still rubbish (no better, no worse).
Today I actually left the house for the first time since Thursday – we decided after the last few days we would treat ourselves to lunch in town (ASK again). It was so nice to get out, and away from either the bed or the sofa, where I have almost exclusively spent the last few days. Although I did feel like a complete liability trying to navigate pavements, roads, traffic, lamp posts, and pedestrians (with umbrellas – the worst kind of pedestrian) with my limited vision.
When sat in the living room my vision now means I have to sit on the right-hand sofa, so that my good eye faces into the room. If I sit on the left-hand sofa it doesn’t really feel like I am sat in the room – my field of vision mainly encompasses the cupboard under the stairs (which while a nice cupboard, is hardly the highlight of the room) and I hear ghostly voices of the people sat to the right of me, who I can’t actually see. Which is very weird – I hope this sorts itself out soon.
Before I finish I just want to say another couple of thank yous…
Firstly to Sally, who decided yesterday that she would cheer me up by taking herself into town (in the pouring rain) and surprising me with some new clothes. She chose very well, every one was a hit – highlights included some nice shirts, and a Guns N’ Roses t-shirt.
And secondly to my Mum, who is still here and helping us out with Saskia, around the house, and just generally looking out for us. With me currently next to useless (or worse, a liability) we just couldn’t do this without another pair of hands.
Right, that’s about it for now.